In an on-going effort to share that hearing loss is best dealt with friends, we want to introduce members of our community. If you have a story to share, please reach out via our Contact form or to admin@hearinglossca.org
Joan Tapanainen of Novato, CA
The genesis of my hearing loss was likely chronic childhood ear infections, sinusitis and industrial noise.
Twenty years ago I began experiencing constant ringing in my ears (tinnitus). Three years ago, I lost significant word recognition in both ears following a severe sinus infection. Soon I developed sensitivity to loud noises (hyperacusis). During that time, my word recognition would fluctuate. For a brief period, my hearing was totally restored in my left ear. Soon to be lost again.
I purchased hearing aides three years ago and finally had Cochlear Implant (CI) surgery in September of 2025. Here are the reactions I have experienced during my journey:
Frustration: My otolaryngologist did not understand why my hearing loss would undergo serious fluctuations. Later I was diagnosed was Meniere’s Syndrome (thankfully without vertigo). I was disheartened that I could no longer enjoy music, enjoy meals in a crowded restaurant or hear my six-year-old granddaughter’s voice. Loud noises were sometimes unbearable.
Fear: I became fearful as the word recognition in my right ear severely declined, my hearing aids were not helping and day-to-day life became more challenging.
Focus: My otolaryngologist referred me to a doctor in San Francisco for CI surgery. The doctor explained the CI process; a wonderful audiologist conducted my evaluation. I researched CI surgery and studied three CI companies to make a decision with regard to equipment choice. I also discussed the CI surgery with several people who had undergone the surgery and the recommended hearing therapy.
Power: The more I learned the more secure I felt. I shared my knowledge with friends and family.
Hope: My journey is not over and my hearing is far from perfect; however, there are improvements. Talking on the phone is easier; I can enjoy TV programing, speaking one-on-one with friends and small groups. I enjoy hearing my granddaughter’s voice. My hearing therapy continues and my word recognition has significantly improved – so has my everyday life.
